Tag: reassurance

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Making Faces

At the risk of letting my inner geek out, I think I’ve figured out the real reason Spider-Man wears a mask.

Oh, don’t worry. This isn’t one of those oddball columns that discusses Superman’s immigration status or Batman’s patent protection. You don’t have to know the mighty Marvel footnotes in order to hang around here or care about how Hollywood treats caped crusaders. (Though if that sort of thing does light your fire, I’ll track you down for coffee later, OK?)

No, this has its roots in more familiar territory: in hospitals, in family, in simple conversation. And, as with so many things in this space, it starts with Heather and Missy.

My wife Heather got to spend the night at Good Samaritan hospital recently. Regular readers may remember that we’ve been chasing some medical mysteries worthy of Dr. Watson and not getting much in the way of answers. To move things along, Heather’s doctor suggested it was time for a sleepover, so that all the tests Heather needed could be run at once instead of strung out over weeks.

Logical. Helpful, even. Certainly appreciated.

But it did mean explaining a few things to Missy.

Despite her mental disability, Missy can be pretty sharp. Sharp enough to guess that when one of her guardians goes into the hospital and doesn’t come back right away, something may be wrong. Vanishing without explanation was never an option – not only do we respect her too much for that, but she’s stubborn enough to sit in the bay window for hours waiting for someone to come home if they’re not back on schedule.

So I took her up to the hospital in the afternoon and let her see that Heather was in good spirits. Missy lost her own mom to cancer, so we assured her that this wasn’t like that, that the doctor was just having a look around to see what was going on so Heather could feel better.

Even so, on the drive back, I could see Missy wasn’t entirely buying it. Not judging by the sniffs and red eyes and careful glances out the car window.

“It really is going to be OK, Miss,” I told her. And I believed it. But at the same time, as I tried to keep Missy’s worries at bay, I felt a sudden kinship with the ol’ webslinger.

Spider-Man, like I mentioned, wears a mask. The comics always have plenty of good reasons, starting with the need to protect his family from supervillain retribution. The fact that his real-world boss is a Spidey-hating jerk offers some extra incentive.

But masks hide more than just an identity. They hide feelings, too, especially fear and anxiety. Comic geeks know that one reason for the wallcrawler’s constant string of wisecracks in a fight is that he’s covering for nervousness, so that he can keep being a hero, to the world and himself. A mask makes that all the easier.

And it’s one that I think many of us have put on a time or too ourselves.

A good parent doesn’t lie to their child, or a guardian to their ward. I firmly believe that. But there are times when you stay brave to keep them from worrying, when your own fear and uncertainty have to stay out of sight so that you can help them through a tough situation. There are times when sharing everything you know and feel would just make the situation harder, especially when the real quest isn’t for information – it’s for reassurance.

I’ve been on the other side of this long ago, when Mom had to deal with breast cancer while my sisters and I were in grade school. We knew that Mom saw a lot of doctors and even went to the hospital sometimes. But Mom and Dad never weighed us down with stress we didn’t need. We knew we were loved, we knew we were safe, and we never knew about the anxiety they felt in the small hours of the night until much later.

There’s a funny thing about reassurance, though. If you provide it enough times, you can start to feel it yourself. “Fake it ‘til you make it,” Mom is fond of saying. I can’t argue: not only is Missy doing better, so am I. In talking to her, I was somehow talking to me, too, and making both of us stronger.

Sometimes, over time, the mask can create the hero.

And that’s a marvel more real than any radioactive spider.

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Making It All Click

It was a Missy night in Chez Rochat. John Travolta would have been proud.

Anyone who knows our developmentally disabled ward Missy also knows her idea of a night well spent: loud music, strong beats and enough space for her favorite dance moves. Since she also has cerebral palsy, these tend to be fairly simple moves — including a carefully turned full-body spin — but no less heartfelt for all that.

One night the joint was jumping especially well when I noticed Missy shaking her hands back and forth. I looked more closely.

No. Not shaking.

Missy was trying to snap her fingers.

She couldn’t quite get enough friction. Sometimes it was even the wrong two fingers. But there was no doubt what she was trying to do. It was the same emphatic gesture I always used to keep the beat — and make her giggle — during a high-energy song.

“All right, Missy!”

There’s been quite a few moments like that lately. Moments with our mostly silent young lady where something just seems to … well, go “click.”

Like another dance step, one foot crossing over the other to point, despite her balance issues.

Or looking at a word list when I ask her to find “Blake” and picking out “Dog” — which he is, indeed.

Or even just the chattiness we’ve been hearing about from her day program, the stream of emphatic words, syllables and phrases that both surprise and delight the folks working with her. (One newer employee used to think she didn’t speak at all; not a surprising conclusion when you consider that Missy spends words the way Ebenezer Scrooge used to spend shillings.)

None of it is a huge spotlight moment, like Helen Keller signing “water” in The Miracle Worker. But small steps matter, too. Especially to the person on the inside.

That one, I know very well.

For me, too, it wasn’t exactly a snap. I showed signs of epilepsy as a young kid, and even after medicine brought it under control, there was still a lot to do. Physical therapy helped my balance and cross-body coordination. Games of chess in the school resource room focused my concentration and memory. But some skills took a long while.

And the one that I remember best, oddly enough, is snapping my fingers.

I couldn’t do it. Could not. I was embarrassed enough that in music class, if a song required snapping, I’d click my fingernails together so it would at least look right.

One night in fourth grade, I somehow decided I’d had it. With the door closed so no one would hear me, I sat up in bed, trying and trying and trying again, pressing and releasing my fingers until I thought they’d fall off.

…Snap.

I’m not sure what time it was. But I remember the relief and amazement when I finally heard that first sharp “snap.” To be honest, I almost couldn’t stop.

It was a small milestone. Maybe even more of a yardstone. But to me, it was huge.

It was an acknowledgment that I wasn’t that different.

I think most of us need that assurance at one point or another. Even those without disabilities. And the way we get it usually isn’t through brass bands and bright marquees. It’s by small gestures, even tiny ones, that affirm we’re worthwhile.

Think of it from the other direction. Most of us can still remember small wounds and humiliations we got in junior high school, tossed off without thinking. Why shouldn’t a small kindness last just as long?

Any of us can do it. More of us should. Some of us probably have without realizing how much we were doing.

Some things really are bigger on the inside.

Missy’s dance goes on. The steps look small. But each one is a celebration, a subtle triumph. Nothing flashy, true. Nothing you could lay your finger on.

But maybe someday she will.

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Night Errant

After about 15 minutes lying on the carpet next to her bed, I looked up into Missy’s face.

“Feeling better now?”

Nod. Smile. “Yeah.”

I smiled back, hugged her. “OK. Now try to get some sleep.”

It was a situation that was odd and familiar at the same time. Growing up, I used to spend some of my nights in the room of my youngest sister, an imaginative girl with equally imaginative nightmares. I’d stay a bit, wait for her to fall asleep, then quietly decamp for my bed.

I’d even had to deal with it as a pet owner once, when our first bird got night terrors, flipping around the cage at breakneck speed. Remembering that she had always enjoyed my music, I began quietly playing on the piano (to Heather’s amusement). Three songs later, Rocky was completely relaxed.

So I had the resume. But there’s still nothing like your first time as a “parent.”

I use the word in quotes since Heather and I are caregivers and guardians for her developmentally disabled aunt Missy, a wonderful woman about eight months younger than me. It’s a role that combines equal parts of parent, sibling, best friend, and sometimes (it seems) second banana in an ongoing comedy act. When Missy smiles and laughs, the room seems to brighten.

But Missy doesn’t talk a lot. So when something scares or worries her, it can be hard to figure out just what.

And that was our challenge when we heard the moans coming from her room late one night – or was it early one morning?

I went in. Heather went in. I went in. Missy went to the bathroom, had her glass of water, sat up a little as each of us tried to deduce what was wrong. Was she feeling OK? Had the day’s story been a little scary? Was she worried about something?

No clear answer. Just a nod or a shake or a shrug, maybe a smile as one of us came in yet again.

Finally, I called on my old big brother training. “Want me to stay up with you for a bit?”

Pause. Nod.

So I turned out the light. Stretched out on the floor. And waited.

It seemed to be enough.

And maybe that’s true for more of us than just Missy.

Sometimes it seems that we live in a world of fears. Some have names: fear for a job, fear for a relative overseas, fear of a bad situation getting worse. But sometimes – maybe even often – they congeal and combine, creating a layer of stress and worry and doubt that hovers like a Denver brown cloud. It can’t be articulated. It can’t even be completely understood.

But maybe understanding isn’t what’s needed.

Maybe what’s needed is a presence.

A friend. A spouse. A parent. Anyone who can be near and remind you that you don’t have to face the darkness alone. Even if they don’t understand the fear, they understand you. They stand by you.

And having them there can make the darkness a little brighter. Maybe even just bright enough.

“Perfect love casts out fear,” the Sunday School lesson went once upon a time. I know that sounds lofty. But even a love that’s still learning can find enough strength to hold fear at bay til the morning comes.

Often, that’s all we need.

Thanks, Missy. Thanks for letting me be that heart in darkness, that friend in the night.

Sleep well.

I’ll see you in the morning.